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Not noticing hunger, thirst or the bathroom until late

It is the middle of the afternoon. You look up from what you were doing and your mouth is dry. You have not eaten. You have needed the bathroom for a while.

For some people it feels as if the signal arrives all at once, with no warning. Noticing hunger, thirst or the bathroom late is something autistic adults describe in research and in their own words [1][2][4][5], and guidance pages for adults with ADHD describe forgetting basic needs while absorbed [10][11]. Some people deal with it by putting the reminder somewhere they can see or hear it: an alarm, a note on the wall, water and snacks where you can see them.

Below are the ideas people use, what they say the pattern is like, and a few sentences you can say to the people around you.

What can help when the signal comes late?

Some people stop waiting to feel it and set up a reminder they will see or hear. These ideas come from guidance pages. You can pick the ones that suit you and leave the rest.

  • A note about meal times where you will see it, such as on the wall behind your computer [10].
  • Alarms or calendar reminders for eating and drinking [10][11].
  • Meals at the same time each day, with an alarm as backup [10][11].
  • A water bottle with time goals marked on it, or a fluid tracker app [11].
  • Snacks within reach and in your eyeline while you are absorbed in something, or in a bag when you are out [10][11].
  • A meal already made, for example by cooking several portions at once [10][11], or appliances that switch themselves off [11].

A questionnaire used with autistic adults includes an item about relying on visual reminders, such as the time on the clock, to know when to eat and drink [6].

One alarm can cover several needs. A drink, a stretch and a bathroom break can share the same alarm.

Why do I forget to eat or drink when I am absorbed?

Researchers do not give one settled cause. One idea they study, mostly in autistic adults, is interoception.

Interoception is the word for sensing what your body is telling you. It covers signals from within the body [9]. Hunger, thirst and needing the toilet all belong to it. The National Autistic Society lists them together under sensory processing: "knowing whether you are hungry, thirsty, hot or cold, need the toilet" [12].

In one questionnaire, 74 autistic adults rated their own body awareness and thirst awareness lower than 228 other adults did. The researchers call the gap large [1].

A smaller study had 20 autistic adults and 20 other adults. The autistic adults said they found it harder to sense body signals overall. Both groups counted heartbeats about equally accurately. The researchers offer one possible reading: a single signal like a heartbeat may be easy to notice, while putting several signals together into a state like hunger or tiredness can be harder [3].

What do autistic adults say it is like?

Some people describe three patterns. This grouping is ours, drawn from three studies, so you may recognise one, a few or none.

The first is a signal that is faint or hard to read. In written accounts from adults who describe themselves as autistic, some said they have limited awareness of hunger, fullness or thirst [2].

The second is a signal that is clear, with no action after it. In focus groups with 32 autistic adults, people said they left needs like drinking or going to the toilet until the need was urgent. Some felt thirst building and still could not act. The researchers place this under autistic inertia, the difficulty starting, stopping or changing activities [5]. The inertia article covers that study.

The third is being absorbed in a task. In interviews with 24 autistic adults in Australia, some described states where they forgot to eat, drink or go to the bathroom, and said they needed someone else to help them out of it. Some also found these states enjoyable [4].

Does this happen with ADHD too?

Guidance pages for adults with ADHD describe something that looks similar from the outside: forgetting basic needs, including eating, while absorbed. The British Dietetic Association describes hyperfocus as "an intense form of concentration for a sustained period of time" [11].

Healthline, in a piece reviewed by a psychologist, suggests writing meal times down as tasks, putting them where you can see them, and keeping food that is ready to eat [10].

In two groups of adults, those with higher ADHD symptom scores reported hyperfocus more often at school, in hobbies and during screen time [7]. Researchers are still working out what the word covers [8].

What can you say to the people around you?

The people close to you cannot see an internal signal either. A short sentence can let them give the cue for you. You can change the words until they sound like you.

With someone close, as a first sentence:

"My body tells me late. If you notice I haven't had a drink, you can ask."

When you are absorbed in something and want a nudge out of it:

"When I am absorbed in something, a tap on the desk and the word 'break' helps me stop."

When someone asks why you do not go as soon as you feel it:

"Going at a set time works for me. Waiting to feel it does not."

At a table, a meeting or a long visit:

"Could we have the water on the table?"

One autistic adult in the interview study said they needed a prompt from someone else to come out of an absorbed state [4]. A sentence like these can be how that prompt gets asked for.

When can a clinician help?

Changes in thirst, hunger or bathroom habits, weight loss you did not intend, or physical symptoms after missed drinks or meals can have many causes, including medical ones. A doctor or other clinician can look at these with you, whatever the reason behind them.

About this article

  • The ideas come from studies and interviews with autistic adults, and from guidance pages by Healthline, the British Dietetic Association and the National Autistic Society. The idea of sharing one alarm across several needs, and the sentences to say, are Mindum's own wording.
  • The studies are with autistic adults. The ADHD material comes from guidance pages and a hyperfocus questionnaire with adults.
  • Questions about changes in eating, drinking or bathroom habits are for a clinician to look at.

Sources

  1. Fiene L, Brownlow C. Investigating interoception and body awareness in adults with and without autism spectrum disorder. Autism Research. 2015;8:709-716. doi:10.1002/aur.1486
  2. Trevisan DA, Parker T, McPartland JC. First-hand accounts of interoceptive difficulties in autistic adults. Journal of Autism and Developmental Disorders. 2021;51(10):3483-3491. doi:10.1007/s10803-020-04811-x
  3. Itoi C, Ujiie Y, Ooishi Y, Kashino M. The relationship between subjective difficulty in interoceptive processing and accuracy of heartbeat perception in autistic individuals. Discover Mental Health. 2024;4(1):13. doi:10.1007/s44192-024-00065-6
  4. Rapaport H, Clapham H, Adams J, Lawson W, Porayska-Pomsta K, Pellicano E. "I live in extremes": a qualitative investigation of Autistic adults' experiences of inertial rest and motion. Autism. 2024;28(5):1305-1315. doi:10.1177/13623613231198916
  5. Buckle KL, Leadbitter K, Poliakoff E, Gowen E. "No way out except from external intervention": first-hand accounts of autistic inertia. Frontiers in Psychology. 2021;12:631596. doi:10.3389/fpsyg.2021.631596
  6. Suzman E, Williams ZJ, Feldman JI, et al. Psychometric validation and refinement of the Interoception Sensory Questionnaire (ISQ) in adolescents and adults on the autism spectrum. Molecular Autism. 2021;12:42. doi:10.1186/s13229-021-00440-y
  7. Hupfeld KE, Abagis TR, Shah P. Living "in the zone": hyperfocus in adult ADHD. ADHD Attention Deficit and Hyperactivity Disorders. 2019;11(2):191-208. doi:10.1007/s12402-018-0272-y
  8. Ashinoff BK, Abu-Akel A. Hyperfocus: the forgotten frontier of attention. Psychological Research. 2021;85(1):1-19. doi:10.1007/s00426-019-01245-8
  9. Khalsa SS, et al. Interoception and mental health: a roadmap. Biological Psychiatry: Cognitive Neuroscience and Neuroimaging. 2018;3(6):501-513. doi:10.1016/j.bpsc.2017.12.004
  10. Choi S. How to not forget to eat with ADHD. Healthline. Medically reviewed by Bethany Juby, PsyD; page dated 24 April 2025. healthline.com/health/adhd/how-to-not-forget-to-eat-with-adhd
  11. Guerin R. Adult ADHD, not "just a trend". British Dietetic Association, 18 March 2025. bda.uk.com/resource/adult-adhd-not-just-a-trend.html
  12. National Autistic Society. Autism and sensory processing. autism.org.uk/advice-and-guidance/about-autism/sensory-processing

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